Spoonie Questionnaire – Chronic Illness About Me
Have your readers get to know you and raise awareness for your chronic illness!
○Introduce yourself ! Whats your name and where are you from?
○What type of content do you produce online?
○What's your favorite comfort food for when you need a pick me up?
○Perfect song to jump start your morning ?
○What does being a spoonie mean to you?
○What are your goals for the present and the future?
○What are your favorite hobbies and past times?
○Do you speak any other language other than english ?
○Whats your official diagnosis? ○What are you self diagnosed with ?
○When did you first start seeing symptoms appear and when were you diagnosed?
○What's the worst part about your illness?
○What has your illness taught you?
○What do you wish other people could know about your chronic illness?
○How has your condition affected your mental well being?
○What are some things you never thought you would miss or struggle with when you were able bodied (if you have a progressive or onset condition)?
○Phrases or advice you are tired of hearing ?
○Hot or Cold Relief?
○What types of medications have you taken and which one has worked for you ?
○Worst side effect of medication you've ever experienced?
○What type of western and natural medical practitioners are you accessing?
○Do you use mobility aids and if so, how do they help ?
○What are some of the best items you have found to help ease your symptoms?
○What's your self care routine for when you're feeling blue ?
○What's your bedtime routine ? ○What do you do when you can't fall asleep?
○How do you cope when you have a flare? What are the prevalent symptoms? How do you let others know that you're not feeling well?
○Tell us about some interests that you've discovered after becoming chronically ill!
○What can friends or family bring you that might help? Any gifts, food, etc?
○What's the number one advice you could give to others who have just been diagnosed or going through your illness?
○Who is your number one support?
○What are things that others or society can do to become more accessible and supportive?
○Do you take part in support groups and if so, have they been effective? Are you part of any online support groups?